Our Little Braveheart
"Sean taught us that Life is not measured by the amount of breaths we take, but by the moments that take our breath away, and Sean's birth and courageous short life were filled by moments that took our breath away"

This is Sean's maman, Mylène.  I am sharing our Champion with you all in his loving memory.  Sean Joseph Lockhart, born November 9^th, 2004 at Sainte-Justine’s Children's Hospital in Montreal, Quebec, Canada and passed away peacefully in my arms, his daddy was holding his tiny hand, and surrounded by both sides of the family in the PICU, on July 8^th, 2005, a week after his 3rd heart surgery.  Sean was born with severe multiple complexe congenital heart defects (CHD, no septum (wall) separating the 2 atriums and 2 ventricles (which means he had one chamber instead of 4), basically had less than half a functionning heart, cardiac conduction system not functioning normally, the inferior vena cava was none existant at the bottom of the heart, but attached directly to the superior vena cava, and other defects...).   Sean's case will remain in the study-research at Sainte-Justine's Hospital in hopes that his short life may save another one's.
Some people only dream of angels, we held one in our arms

                                    
Sean was born with bleach blond hair, wide grey blue eyes to capture every precious minute he could, long fingers to grasp on to life, and big feet to climb those uphill battles.  His heritage from his daddy's side is Scottish (granny and grandda being from Scotland) and mommy's side of the family, French Canadian.  Our little big man spent the 1st month of his life in NICU and PICU and last 2 months of his life in PICU, he was never alone, I was at his bedside everyday (14-16 hours a day), and I also slept at the hospital for 3 months.  Sean's daddy was also at his side during the day and most evenings.  If his daddy wasn't at the hospital he was spending time with his daughter, Kaitlyn, which Sean understood, he loved his big-sister so much.   The 5 months he was not hospitalized he was always smiling and enjoying life, he would even smile while sleeping (I would say he was dreaming of angels).  He was a curious boy, he wanted us to always bring him around the house so he could see and touch everything.  Since we couldn't take him out much due to the bitter winter, we strolled him around the house, he really got a kick out of that.  He enjoyed watching Barney, Sean would smile at Barney and get so excited just seeing us pop the DVD in, and he had his own private conversations with his purple buddy.  While watching TV he would just play with his suce, attached to him, it seemed to comfort him.  Sean loved taking a bath, I would sit him in his vibrating chair, so he could see I was preparing his bath and he would try and wiggle his way out of it, while laughing and smiling (getting all excited), and once I put him in it, he splashed and had a ball.  Sean loved rubbing / scratching his belly when it was bare, the family would laugh, saying he was just like an old man (I always knew Sean had an old Soul). He was amused by the ceiling fan when it would turn, when it was off, he would just stare at it, but if we'd turn it on for him, there would go his laugh and smiles.   Sean's favorite foods were papaya, sweet patatoes and pretty much any fruit.  We took our morning and afternoon nap together and he would just snuggle and fall asleep (one of my favorite moments), but night time was another story, he wanted to stay up and spend time with us, even though he was tired.  He didn't want to miss a beat.    He loved playing with his favorite toy rabbit, his puppet Caillou and also his scrunchy book which had baby pictures on it.  Over Sean's change table there was a big blue butterfly hanging from the ceiling, which we could twirl for him, another thing that made him laugh, but what can I say he always smiled and laughed and enjoyed life.  Just what he would want us to do, Enjoy Life !  Sean touched many, many lives most of whom he never had a chance to meet.  Everyone wanted an update on our Champion and followed his journey on this earth and prayed for him.  He taught many people the value of life and that no matter what, you can still smile and laugh.  Sean filled our lives with unconditional love, joy and we will love and remember him forever.
Sean was the most courageous fighter and Champion, that we've ever met.  He showed how much strength and will to live, even so young he had conquerred.  The battles which he had to beat were fierce and he won quite a few of them except for his last.   We are honoured and privileged to have had Sean as our son, he was chosen for us and we gave and received the most unconditional love that most humans can only dream of.  We got to hold, love and nurish a pure angel.  He was and will always remain our Little Braveheart.  Sean, maman, daddy and Kaitlyn miss you terribly, we will love you forever!

You can read my journal of Sean's life under "His Legacy" tab.  I had started it the day Sean was born, for him to read later on.  I wanted him to know how strong and courageous he was, winning all these battles.  The last 2 months of Sean's life are still not included on his site, I am not able to type the words yet (they are in my personal hand written journal).  Those last 2 months were horrible, at one point our son had more than 30+ machines/IV's hooked up to his small body, weighing less than 12 pounds, there are no words to describe our utter helplessness in seeing our son like that.  So, one day I will share those last 2 months, but for now I am still emotionally unable to type it out yet. Now, this journal is of Sean's life and death and my thoughts, feelings and struggles during Sean's life and afterwards.
We would like to thank Dre Vobecky, Dre Gauvin, Dre Burgit, all other doctors, the nurses, the respiratory specialists and staff from the PICU at Sainte-Justine's Children's hospital, for the undeniable love, care and support that Sean and we received.  They are all Earth Angels in our eyes.  Thank You ! 

                            

Heart Angel's in Heaven !
Group of mother's who have lost their child(ren) to CHD
http://health.groups.yahoo.com/group/heartangelsinheaven

Sean's heavenly heart friends!

Kiah Grace Boutte
http://www.ourangelkiah.memory-of.com

Evan William Campbell
www.evansfight.org

Amelie Ivanka Dobek
www.ameliedobek.com

Nathaniel Aidan Good
www.freewebs.com/nathansmemory

Zackary Salvati
http://www.angelfire.com/oh5/zackary

Charles Christopher Smith
http://charlie.isinourhearts.com

Kyle Smith
www.angelfire.com/nc3/speciallittleman/index.html



            
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Sean's Purple Buddy Barney